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Western Journal of Nursing Research
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*Alzheimer's Disease
*Family Issues
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A Family's Coming to Terms with Alzheimer's Disease

Jo Ann Perry

School of Nursing, University of British Columbia

Ellen F. Olshansky

Department of Family and Child Nursing, University of Washington

Priscilla M. Koop, R.N., Ph.D.

Faculty of Nursing University of Alberta

Jane Mannweiler Cardea, Ph.D., R.N.

Incarnate Word College San Antonio, Texas

Findings of a qualitative analysis of several members of a family in which one member has Alzheimer s Disease (AD) support the notion that differences in how eachfamily member defines and makes meaning of the situation have consequences for the family as a unit. Ten in-depth individual and dyadic interviews of five available fanily members were conducted during a period of 18 months. Data support the finding that each member of the family experienced a similarprocess of coming to terms with changes in theperson who has AD. Thisprocess consisted of three stages: identifying how the person with AD was the same as he was before, as well as how he was different, prior to disease onset; redefining the identity of the person with AD; and rewriting one's relationship with the person with AD. This study supports both Knajl's and Deatrick's concept of family management and Patterson's concept offamily meaning.

Western Journal of Nursing Research, Vol. 18, No. 1, 12-28 (1996)
DOI: 10.1177/019394599601800102
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