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Western Journal of Nursing Research
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*Caregivers
*Parkinson's Disease
*Patient Rights
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Perceived Control and Well-Being in Parkinson's Disease

Margaret I. Walihagen

Department of Physiological Nursing, University of California, San Francisco

Meryl Brod

Center for Clinical and Aging Services Research, Instutute on Aging, San Francisco

Marlene Reimer, R.N., M.N., C.N.N.(C.)

Faculty of Nursing University of Calgary

Carolyn L. Lindgren, R.N., Ph.D.

Wayne State University Detroit, Michigan

Sense of control in the context of an uncontrollable chronic illness is explored by analyzing the impact of the patient's perceived control over symptoms (PCS) and perceived control over disease progression (PCDP) on patient and caregiver outcomes. PCS was significantly associated with patient well-being, caregiver well-being, and less caregiver burden. No relationship was found between PCDP and patient well-being, caregiver well-being, or caregiver burden. Findings support the importance of symptom management, viewing the patient-caregiver dyad as a unit, and the needforfuture research on control and transition points in chronic illness.

Western Journal of Nursing Research, Vol. 19, No. 1, 11-31 (1997)
DOI: 10.1177/019394599701900102
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