Western Journal of Nursing Research

 

Advanced Search

Journal Navigation

Journal Home

Subscriptions

Archive

Contact Us

Table of Contents

Click here for more information

Click here for more information

Sign In to gain access to subscriptions and/or personal tools.
This Article
Right arrow Full Text (PDF)
Right arrow References
Right arrow Alert me when this article is cited
Right arrow Alert me if a correction is posted
Right arrow Citation Map
Services
Right arrow Email this article to a friend
Right arrow Similar articles in this journal
Right arrow Similar articles in PubMed
Right arrow Alert me to new issues of the journal
Right arrow Add to Saved Citations
Right arrow Download to citation manager
Right arrowRequest Permissions
Right arrow Request Reprints
Right arrow Add to My Marked Citations
Citing Articles
Right arrow Citing Articles via HighWire
Right arrow Citing Articles via Google Scholar
Google Scholar
Right arrow Articles by Williams, J. K.
Right arrow Articles by Schutte, D. L.
Right arrow Search for Related Content
PubMed
Right arrow PubMed Citation
Right arrow Articles by Williams, J. K.
Right arrow Articles by Schutte, D. L.
Social Bookmarking
Add to CiteULike   Add to Connotea   Add to Del.icio.us   Add to Digg   Add to Reddit   Add to Technorati  
What's this?
Western Journal of Nursing Research, Vol. 19, No. 1, 71-81 (1997)
DOI: 10.1177/019394599701900105

Benefits and Burdens of Genetic Carrier Identification

Janet K. Williams

Debra L. Schutte

College of Nursing, University of Iowa

This qualitative study examined experiences of adults requesting genetic-carrier testingforfour autosomal-recessive and X-linked-recessive disorders. The sample consisted of 34 adults with a positive family history or membership in an ethnic group at risk for the inherited disorder A semistructured interview guide was used to collect data during an interview I month after receipt of test results. Noncarriers experienced benefits of emotional relief andfreedom to move ahead with reproductive planning. Carriers experienced burdens of sadness and loss of reproductive expectations. Some subjects in both groups experienced difficulty disclosing results to selected family members and expressed concerns regarding disclosure of testing to insurance providers.


Add to CiteULike CiteULike   Add to Connotea Connotea   Add to Del.icio.us Del.icio.us   Add to Digg Digg   Add to Reddit Reddit   Add to Technorati Technorati    What's this?


This article has been cited by other articles:


Home page
 Arch. Dis. Child. Fetal Neonatal Ed.Home page
E P Parsons, A J Clarke, and D M Bradley
Implications of carrier identification in newborn screening for cystic fibrosis
Arch. Dis. Child. Fetal Neonatal Ed., November 1, 2003; 88(6): F467 - 471.
[Abstract] [Full Text] [PDF]

Home page
 Biol Res NursHome page
G. Anderson
State of the Science: Social, Psychological, and Ethical Nursing Research in Genetics
Biol Res Nurs, October 1, 1999; 1(2): 133 - 146.
[PDF]