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This version was published on June 1, 2008
Western Journal of Nursing Research, Vol. 30, No. 4, 435-457 (2008)
DOI: 10.1177/0193945907303050

Games of Lives in Surviving Childhood Brain Tumors

Chin-Mi Chen

National Taiwan University, Graduate Institute of Nursing, and National Defense Medical Center

Yueh-Chih Chen

National Taiwan University, Graduate Institute of Nursing, ychichen{at}ntu.edu.tw

Joan E. Haase

Indiana University, School of Nursing

The purpose of this phenomenological study was to describe the commonality of the lived experience of adolescent and young adult survivors (AYAS) of brain tumors in Taiwan from a sociocultural perspective. Seven AYAS aged 13 to 22 years, who had survived 5 to 10 years from the time of diagnosis, participated in this study. In consideration of their emotional duress, each participant was interviewed only once. The data revealed an essential structure: the game of life. The essential structure included six themes as follows: (a) no longer playing well, (b) wandering on the outer edges of social life, (c) helplessly struggling with role obligations, (d) rationally regulating the meaning of surviving, (e) winning a new social face, and (f) mastering the game of life. The findings suggest how nurses might help AYAS to succeed in psychosocial adjustment.

Key Words: adolescent • cancer survivor • childhood brain tumor • adaptation • psychological


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