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Caregiver Perspectives on Safety in Home Dementia Care
Helen W. Lach
Saint Louis University School of Nursing, lachh{at}slu.edu
Yu-Ping Chang
Saint Louis University School of Nursing
Home safety is a significant problem for caregivers of people with Alzheimer's disease and other dementias. This focus group study is designed to gain insight into caregivers' experiences of managing safety issues and to explore application of the transtheoretical model of health behavior change (TTM) to this problem, toward development of interventions to improve safety care. Caregivers identified safety problems and management strategies, as well as barriers and factors facilitating management, that can help guide the development of interventions. Caregivers described different stages of adopting actions to prevent accidents and injuries consistent with the TTM. The TTM warrants further study for understanding how to help caregivers make changes to promote safe care.
Key Words: caregiving home safety injury prevention Alzheimer's disease transtheoretical model
References
- Algase, D.L., Son, G.R., Beattie, E., Song, J.A., Leitsch, S., & Yao, L. (2004). The interrelatedness of wandering and wayfinding in a community sample of persons with dementia. Dementia and Geriatric Cognitive Disorders, 17(3), 231-239.[CrossRef][Web of Science][Medline]
[Order article via Infotrieve]
- Alzheimer's Association. (2005). Safety at home: Adapting the home to support the person with dementia. Retrieved December 18, 2005, from http://www.alz.org/Resources/FactSheets.asp
- Berg, L., McKeel, D.W., Jr., Miller, J.P., Storandt, M., Rubin, E.H., Morris, J.C., et al. (1998). Clinicopathologic studies in cognitively healthy aging and Alzheimer's disease: Relation of histologic markers to dementia severity, age, sex and APOE genotype. Archives of Neurology, 55, 326-335.[Abstract/Free Full Text]
- Cable, G., Reisner, M., Gerges, S., & Thirumavalavan, V. (2000). Knowledge, attitudes, and practices of geriatricians regarding patients with dementia who are potentially dangerous automobile drivers: A national survey. Journal of the American Geriatrics Society, 48, 14-17.[Web of Science][Medline]
[Order article via Infotrieve]
- Coltharp, W., Richie, M.F., & Kaas, M.J. (1996). Wandering. Journal of Gerontological Nursing, 22(11), 5-10.
- Dilorio, C., Hockenberry-Eaton, M., Maibach, E., & Rivero, T. (1994). Focus groups: An interview method for nursing research. Journal of Neuroscience Nursing, 26(3), 175-180.[Medline]
[Order article via Infotrieve]
- Gitlin, L.N., & Corcoran, M. (2000). Making homes safer: Environmental adaptations for people with dementia. Alzheimer's Care Quarterly, 1(1), 50-58.
- Gray-Vickrey, P. (1993). Use and application of focus groups. Journal of Gerontological Nursing, 19(5), 21-27.
- Horvath, K.J., Hurley, A.C., Duffy, M.E., Gauthier, M.A., Harvey, R.M., Trudeau, S.A., et al. (2005). Caregiver competence to prevent home injury to the care recipient with dementia. Rehabilitation Nursing, 30(5), 189-196.
- Hurley, A.C., Gauthier, M.A., Horvath, K.J., Harvey, R., Smith, S.J., Trudeau, S., et al. (2004). Promoting safer home environments for persons with Alzheimer's disease: The home safety/injury model. Journal of Gerontological Nursing, 30(6), 43-51.
- Kingry, M.J., Tiedje, L.B., & Friedman, L.L. (1990). Focus groups: A research technique for nursing. Nursing Research, 39(2), 124-125.[Web of Science][Medline]
[Order article via Infotrieve]
- Lach, H.W., Reed, A.T., Smith, L.J., & Carr, D.B. (1995). Alzheimer's disease: Assessing safety problems in the home. Geriatric Nursing, 16(4), 160-164.[CrossRef]
- Mace, N.L., & Rabins, P.V. (2001). The 36-hour day: A family guide to caring for persons with Alzheimer disease, related dementing illnesses, and memory loss in later life (2nd ed.). Baltimore: Johns Hopkins University Press.
- Marcus, B.H., Banspach, S.W., Lefebvre, R.C., Rossi, J.S., Carleton, R.A., & Abrams, D.B. (1992). Using the stages of change model to increase the adoption of physical activity among community participants. American Journal of Health Promotion, 6, 424-429.[Medline]
[Order article via Infotrieve]
- Martinson, I.M., Muwuaswes, M., Gilliss, C.L., Doyle, G.C., & Zimmerman, S. (1995). The frequency and troublesomeness of symptoms associated with Alzheimer's disease. Journal of Community Health Nursing, 12(1), 47-57.[CrossRef][Medline]
[Order article via Infotrieve]
- Morgan, D.L. (1998). Focus groups as qualitative research. 2nd ed. Thousand Oaks, CA: Sage.
- Morris, J.C. (1993). The Clinical Dementia Rating (CDR): Current version and scoring rules. Neurology, 43, 2412-2414.[Free Full Text]
- Morris, J.C., Rubin, E.H., Morris, E.J., & Mandel, S.A. (1987). Senile dementia of the Alzheimer's type: An important risk factor for serious falls. Journal of Gerontology, 42(4), 412-417.[Abstract/Free Full Text]
- Oleske, D.M., Wilson, R.S., Bernard, B.A., Evans, D.A., & Terman, E.W. (1995). Epidemiology of injury in people with Alzheimer's disease. Journal of the American Geriatrics Society, 43, 741-746.[Web of Science][Medline]
[Order article via Infotrieve]
- Padula, C.A., & Burbank, P.M. (2002). Applying the transtheoretical model: Behavior change among family caregivers and nursing staff. In P. M. Burbank & D. Riebe (Eds.), Promoting exercise and behavior change in older adults: Interventions with the transtheoretical mode (pp. 269-298). New York: Springer.
- Paveza, G.H., Cohen, D., & Eisdorfer, C. (1992). Severe family violence and Alzheimer's disease: Prevalence and risk factors. Gerontologist, 32, 493-497.[Abstract]
- Polit, D.F., & Beck, C.T. (2004). Nursing research: Principles and methods (7th ed.). Philadelphia: Lippincott.
- Prochaska, J.O., & DiClemente, C.C. (1983). States and processes of self-change of smoking: Toward an integrative model of change. Journal of Consulting and Clinical Psychology, 51, 390-405.[CrossRef][Web of Science][Medline]
[Order article via Infotrieve]
- Prochaska, J.O., DiClemente, C.C., Velicer, W.E., & Rossi, J.S. (1993). Standardized, individualized, interactive, and personalized self-help programs for smoking cessation. Health Psychology, 12(5), 399-405.[CrossRef][Web of Science][Medline]
[Order article via Infotrieve]
- Prochaska, J.O., Norcross, J.C., & DiClemente, C.C. (1994). Changing for good. New York: Morrow.
- Prochaska, J.O., Redding, C.A., & Evers, K.E. (2002). The transtheoretical model and stages of change. In K. Glanz, B. K. Rimer, & F. M. Lewis (Eds.), Health behavior and health education: Theory, research, and practice (3rd ed., pp. 99-120). San Francisco: Jossey-Bass.
- Reed, A.T., Lach, H.W., Smith, L., & Birge, S.J. (1990). Alzheimer's disease and the need for supervision American Journal of Alzheimer's Care & Related Disorders & Research, 5(5), 29-34.
- Rowe, M.A., & Glover, J.C. (2001). Cognitively impaired individuals who become lost in the community: A descriptive study of safe return discoveries. American Journal of Alzheimer's Disease, 16(6), 38-49.
- Sarkin, J.A., Johnson, S.S., Prochaska, J.O., & Prochaska, J.M. (2001). Applying the transtheoretical model to regular moderate exercise in an overweight population: Validation of stages of change measure. Preventive Medicine, 33, 462-469.[CrossRef][Web of Science][Medline]
[Order article via Infotrieve]
- Schumacher, K.L., Stewart, B.J., Archbold, P.G., Dodd, M.J., & Dibble, S.L. (2000). Family caregiving skill: Development of the concept. Research in Nursing & Health, 23(3), 191-203.
- Teri, L., Borson, S., Kiyak, A., & Yamagishi, M. (1989). Behavioral disturbance, cognitive dysfunction, and functional skill: Prevalence and relationship in Alzheimer's disease. Journal of the American Geriatrics Society, 37, 109-116.[Web of Science][Medline]
[Order article via Infotrieve]
- Teri, L., Traux, P., Logsdon, R.G., Uumoto, J., Zarit, S., & Vitaliano, P.P. (1992). Assessment of behavioral problems in dementia: The revised memory and behavior problems checklist. Psychology and Aging, 7(4), 622—631.[CrossRef][Web of Science][Medline]
[Order article via Infotrieve]
- Vallis, M., Ruggiero, L., Greene, G., Jones, H., Zinman, B., Rossi, S., et al. (2003). Stages of change for healthy eating in diabetes: Relation to demographic, eating-related, health care utilization, and psychosocial factors. Diabetes Care, 26(5), 1468-1474.[Abstract/Free Full Text]
- Wang, C.C., & Carr, D.B. (2004). Older driver safety: A report from the older drivers project. Journal of the American Geriatrics Society, 52(1), 143-149.[CrossRef][Web of Science][Medline]
[Order article via Infotrieve]
- Watts, D.T., Cassel, C.K., & Howell, T. (1989). Dangerous behavior in a demented patient. Journal of the American Geriatrics Society, 37, 658-662.[Web of Science][Medline]
[Order article via Infotrieve]
This version was published on December
1, 2007
Western Journal of Nursing Research, Vol. 29, No. 8,
993-1014 (2007)
DOI: 10.1177/0193945907303098

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